SheSaid Forum - Cyberknife cancer treatment

Posted by ash1995

forresters beach,NSW, 18/09/2009

My wife had breast cancer and beat it. She then got secondaries in the brain. 9 tumours, no hope said the doctors in Australia. But we found Cyberknife overseas. She went once and had this treatment over a few days. 9 mths later had scans and still 4, yippee they had gotten rid of 5. So off she went again. Had Cyberknife in USA for the second time. Came back, was successful. 6 mths later she died of liver failure due to the treatments used in Australia that weaken the body.

Now if we had known about Cyberknife and she had been able to have it earlier I feel things would be different. Cyberknife uses no drugs, no side effects, no healthy organs harmed (such as liver) accurate, treats kids. Why have we not heard of this in Australia. Why dont we have it in Australia. I am rectifying this. I have a Facebook group - bring Cyberknife to Australia with over 700 members (doctors, patients, families etc) and a petition to get it to Australia. Wont help us but may help others
www.facebook.com/

Posted by leahc69

Central Coast NSW, 03/10/2009

This is going ahead in leaps and bounds, wish I could help get the petition into parliament, needs to be acted upon before too many more die

Posted by cyberknife

gold coast, 14/10/2009

The facebook group now has over 1000 members pleading to get Cyberknife to Australia. centres are opening in more countries world wide but not here. Over 1300 have signed the petition at the site: www.facebook.com/
We must act now as over 100 people will die today from cancer and many more having horrific treatments which may do no good. Cyberknife can save lives and allow people without a good prognosis to live the final part of their lives pain free and in dignity.

Posted by ash1995

forresters beach,NSW, 20/10/2009

Getting heaps of support for this cancer treatment. Having a big story done in the paper soon on Gold Coast. TV segments coming up also. Now if we could just talk some sense into the banks or the Gov't me and my kids can start living a normal life. heres our TV story so far:
www.nbntv.com.au/

Posted by ja252ck

nsw, 01/05/2010

My mother died of breast cancer in 1984. In 26 years not one thing has changed in all that time. Women are still dying when they should not be. We give millions to the Breast Cancer of NSW and they sent last year 11 million dollars of our money in Reach. WHY don't they buy the Cyberknife which cost about 5 or 6 million. This Cyberknife has no side effects, no healthy organs harmed.
I have petition to have one of these in Australia before more people have to die. Please everyone sign the petition.

Posted by ash1995

forresters beach,NSW, 01/05/2010

Just an update. I saw ja252ck's response. Our group, mentioned in 1st story now has over 3300 members, with petition also. I have another group due to the fact I basically have to give away my house due to Cyberknife costs as we had to go overseas - Was successful so would do it again tomorrow, but would help if we had it here in Australia or actually got the assistance of the program set up to assist in accessing overseas treatment not available here (MTOP)
here is my group
www.facebook.com/

Posted by maxbliss

adelaide, 01/05/2010

www.cyberknifecancercenter.com/
--thought i would look this up and googled........national media coverage,high profile personality and/ or cancer charity must raise awareness to everyone.....and then the money raised for the equipment and trained specialists to operate it.........my thoughts tonite only...im in the medical imaging field and havent heard of the cyberknife.....best wishes to u ash and ur supporters

about cyberknife

Who Is A Candidate For Cyberknife?

Arteriovenous malformation (AVM)
Acoustic Neuroma
Adrenal Tumors
Astrocytoma/Glioma/GBM
Bone Lesions
Chordoma
Craniopharyngioma
Hemangioblastoma
Liver

• Liver Mets
• Hepotocellular Cancer
• Cholangiocarcinoma
Lung

• Early Stage Primary Non Small Cell Lung Cancer
• Recurrence of Advanced-stage Non Small Cell Lung Cancer after prior treatment
• Lung Mets
Meningioma
Metastatic Tumors in any location
Nasopharynx
Oligodendroglioma/Medulloblastoma
Other Benign Tumors
Other Primary Tumors
Pancreas
Pelvic Tumors (prostate, colorectal, cervical, endometrial, sarcomas) recurring after primary treatment
Pituitary Adenoma (Cushing’s Disease)
Prostate
Renal Cell Cancers
Schwannoma
Spine
Trigeminal Neuralgia
Any Tumor which reoccurs after prior

Posted by maxbliss

adelaide, 01/05/2010

......continued from above
prior surgery or radiation, in any location of the body.....
ran out of space,sorry

cyberknife

Posted by ereperez

Australia, 10/05/2010

I really want to do something for you but no one listen and I really want in Australia if it is good and helping patients to be fit and fine.

Posted by ash1995

forresters beach,NSW, 11/05/2010

This is a good start
www.facebook.com/

and a petition to sign
www.lobbyingforum.com/

thanks

Posted by redpolly66

Rosebery,NSW, 11/05/2010

Hi Ash, by the look of things slowly but surely, we shall get Cyberknife into Australia. Hopefully in EVERY STATE. All the best to you

you are an amazing crusader. Check my facebook status today! Spreading the word quickly. Pauline

Posted by leahc69

Central Coast NSW, 17/05/2010

On the Facebook site Ash started as a result of being forced out of his home is a site set up by a lady who took a friend to Malaysia for Cyberknife about 4 yrs ago. Its great as it shows a personal photo diary of her trip as well as much information on the treatment. I recommend.
www.facebook.com/

Posted by EHSF

Sydney, New South Wales, 28/05/2010

Our 16 year old son, Erik was diagnosed with Osteosarcoma (Bone Cancer) in his Femur in July 2007, he was offered conventional treatment, Chemotherapy, Amputation, Chemotherapy. It came back in his lungs in May 2008 and Erik passed away when he was 17 on 7 November 2008. We found out about Cyberknife too late, the bone cancer in his lungs could have been treated when they were smaller than 4cm, by the time we found out they were too big. We did take Erik overseas for further treatment(not Cyberknife) but it was too little, too late. See out website: erikhausoulsarcomafoundation.com/ I am walking to Canberra from Richmond, NSW starting Monday 7 June. It is about awareness and fund raising for Sarcomas. Denise (Erik's Mum).

Posted by sammyk

gold coast, 29/05/2010

Hi Denise
Wow that is such a tragic story and 1 that frustrates me. I have read all about the Cyberknife and not to have it here as an option is criminal. 2UE did a chat story on the Lowy Institute yesterday and a number of us wrote in to ask that while we are doing research (which may take yrs) some of the funds be used for Cyberknife to treat people now. Was posted on there site for about 2 hrs then all of them were deleted. This was important due to the fact that the childrens cancer centre was involved and Cyberknife treats children with less invasiveness and side effects and quickly. two further things. 1 is the Warwick foundation which has been set up for assistance for young adults with cancer.
The other is www.cyberknifeaustralia.com
Good luck with the walk, many people are currently doing a lot to try and get Cyberknife to Australia and a couple are helping Aussies get it overseas (and for free in many cases I have seen)
best wishes
sam

Posted by EHSF

Sydney, New South Wales, 29/05/2010

Hi Sam,

Thank you for your reply to my post. Yes, the death of our son was tragic and since Erik died, many more have followed.

There are a great many people I speak to regularly who are pushing the Cyberknife cause and we will make it happen.

The Erik Hausoul Sarcoma Foundation is primarily a Teenage Cancer Non-Profit Charitable Organisation supporting teenagers with cancer through awareness, fundraising and support. We are a support service for families of teenagers suffering cancer. As a mother of a teenage boy who suffered greatly and fought so hard only to loose that fight, I have a strong understanding of what Mothers, Fathers and Families go through and I am able to be supportive and helpful in many ways.

Our Foundation spreads awareness about teenage cancer, raises funds for research and we have 7 events organised for 2010 to help make this happen. We are committed and passionate about what we do and achieving our goals.

Thank you for your best wishes,

Denise

Posted by ash1995

forresters beach,NSW, 10/12/2011

Back again. Has been a while. My book is selling well www.lulu.com/
Still havent sold way nearly enough to fund the wonderful Cyberknife cancer treatment. However some wonderful news. National media has all of a sudden shown huge interest in the entire story. We have been filming for a few days and a big media push for the cancer treatment on TV and news will be presented in the new year 2012. We will soon have up to date cancer treatments available here as the rest of the world has for years. You can join us at
https://www.facebook.com/groups/43255564285/
Thousands of others have and you can read about them most recent family forced to a hospital in Malaysia to obtain the treatment. Only took 1 day.No surgery or drugs and no side effects. Why dont hospitals in this country offer it?

Posted by Shull

BAYONET HEAD,WA, 20/12/2011

Can u buy the book at dymocks or anywhere like that?

Posted by ash1995

forresters beach,NSW, 11/05/2012

My book is coming to Dymocks in a few mths. It is available now thru Amazon: www.amazon.com/

Posted by ash1995

forresters beach,NSW, 03/08/2012

We had success this week. The Sir Charles Gardiner hospital in Perth is building a cancer centre that will offer Cyberknife next year. The 1st in Australia. WA Cancer Centre will be the first department in Australia to offer Cyberknife treatments to patients. The Cyberknife unit will be installed in 2013 when the new WA Cancer Centre is opened. The Cyberknife ia a robotic radiosurgery unit whic
h means it constantly tracks the position of the target site and corrects for any movement. It us used to treat targets that move with a high level of precisions to areas usually not treated by traditional SRS such as lung and prostate.

It took 3 yrs but they finally agreed. Great news for cancer care in Oz.
www.facebook.com/

www.wacancercentre.org.au/

Cyberknife cancer treatment

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